top of page
Liquid Bubbles

About Scleroderma

What's Scleroderma?

Scleroderma is a rheumatic disease of the connective tissues. It causes chronic pain, skin tightening, joint stiffness, and overall creates a limitation in one's mobility, severe damage or complications for the body's digestive, respiratory and circulatory systems. Through the support of family, loved ones, and prayer, Monika keeps her strength through her fight. Knowledge is half the fight. Check out the link below to go to find out more.

psx_20190728_145159.jpg
Liquid Bubbles

Mo's Story

Hi, I’m Celebrity Chef Monika Hilton. Just a few years ago, I was a competitive chef and a well known cake artist, once competed on Food Network's, Cake Wars and Netflix's, Sugar Rush, with a huge clientele in the southeast area as well as the entertainment industry and I now experience great difficulties when baking and decorating cakes due to the loss of mobility in my hands and not being able to lift, bend, or stand for extended periods of time.  

 

Six years ago, I was diagnosed with an autoimmune disease called Scleroderma meaning (the hardening of the skin) It's a connective tissue disorder that also causes chronic pain, skin tightening, joint stiffness, fatigue, intestinal complications and potentially organs failure. 

Scleroderma has caused deformities in my hands/fingers my arms and severely  limited my mobility. I cannot be in direct sunlight & I'm highly sensitive to extreme hot and cold temperatures. My skin on several parts of my body is shades darker than my face resembling Vitiligo. I wear splints on my teeth because the connective tissues in my mouth are deteriorating causing several teeth to be loose making it very difficult to eat.  My dental hygiene is also suffering because I can't open my mouth more than the width of my thumb therefore, flossing is impossible and brushing is a challenge.

I never heard of this disease until I was diagnosed 6 years ago but since then, I've been researching as much as I can and sharing my journey with the world.  
It has changed my life physically and mentally, briefly, even had me convinced to give up because I was hit with so much at once!  Fortunately, I decided to fight for my life and all the abilities that were stolen from me and share with the world, "The Mo Experience!"

My goal is to spread awareness about this disease and solicit more advocates to become more involved to raise more awareness and money to donate towards a cure for Scleroderma.
I know God is a healer and I am in constant prayer for myself and the other 300,000 plus people this disease is affecting.
My transparency about my journey with Scleroderma was overwhelming at first because of the many changes I've experience and its hard being the only person in the room talking about something people are not that familiar with. 

 

I'm asking you to please help me spread knowledge about this debilitating disease.  There is no cure for Scleroderma but early detection can slow down its progression. Often times the symptoms mimic other autoimmune diseases with muscle or nerve pain, joint stiffness and fatigue but nothing compares to the skin tightening that I am experiencing.
Please share your platform and help me spread awareness by  sharing my story.
https://youtu.be/RbDuceKDbSA
www.Scleroderma.org 
Thank you for your time and consideration. Blessings to you.

Love & Support

Family

Monika & Marvin Hilton have been in business for over 20 years and together more than 30 years, married 25., we first serve the Greater Columbia, SC area and now wowing the Atlanta Ga area with "The Mo Experience".  Custom-designed cakes and delicious home cooking are Chef Mo's specialty.. 2022 marks The Hilton's 32 years together through thick and thin. Raising 3 beautiful children and supporting one another throughout their journeys together and individually.

psx_20190806_112631.jpg
Liquid Bubbles

Spreading Awareness

IMG_20230407_004853_133.jpg
Liquid Bubbles

Latest Blog Post

bottom of page